Monday, December 15, 2008

Keeping on keeping on

Sometimes it feels as if there is just a stasis, and that I'm not getting past resentments and I'm not hopeful enough or there's a right way to do things and I've taken a left turn. This morning I feel like I need to be guided out of a welling funk. It's possible that I'm letting my mind wander, and it's also possible that I'm experiencing fear.

Friday, December 12, 2008

After the Dr.s Appointment

My fabulous Dr. reiterated that there has been significant improvement throught my tumor (plural) shrinkage, so we'll continue with 2 more chemo rounds, then do a radioactive heart test, because one of my drugs causes heart problems at a certain threshold, much as the cisplatin caused neuropathy. Don't want that!!
I am meditating more, now, to the self-recorded ones from the Simonton recommended ones in his book, as well as modified ones from the scripts which there is a link for on these pages. These are becoming more clear and mentally powerful as I practice them more.
Not juicing as much as I should but I am totally aware of what I'm eating.
My therapy is the greatest psycho/emotional helper - I'm blessed and guided to be placed with my Teacher/Guide. And now, as I start to open up to Mike about the things I discuss with my Guide, he's known some of these things all along~ What the??? But he's known it for himself; I may have suspected these things, been told about them or have been informed to do them before, but I haven't known it for me, and I think you need or have to know certain things yourself. You have to learn to perceive and then see anew. And then ACT anew, from the heart.
I have managed to do this before (during a particularily torturous employment period) which changed the conditions in my life dramatically as I received my next job, which I adored.
But, obviously, there's more that needs changing as I refocus my life in many different ways.

Thursday, December 11, 2008

prescription

2 more rounds of chemo, heart test, then CT scan. Apparently one of my drugs affects the heart, much in the way that one of my former drugs affected the nerves. Things are still shrinking, though, and other things are less prominent. There has been a significant improvement overall, and I go for chemo today, then again New Year's Eve day. On I walk, but looking around more.

Monday, December 8, 2008

Sudden recurrence of thought

Who I am is not diminished without hair. Who we are is not diminished by illness or disability.

Thursday, December 4, 2008

CT scan today

Today is the scan that tells of the success of this round of chemo.
Man, I pray that this is good.
My throat has been throbbing with tears this week, and last.
It's letting go of the rope and just jumping. Stepping out of the boat.

Wednesday, December 3, 2008

Summer Pictures

























In case anyone is weary of the weather, here are some pictures for you. Click on them and you can feel like you're there!


Sunday, November 30, 2008

Setting Goals and a 2 Year Health Plan

(Simonton, p.105)
"The goals to set in your 2 year health plan are bottom-line goals, the minimum you intend to accomplish.....This week, do no more than setting your goals in the first 3 areas. Take several weeks to complete your work on this assignment."

"Creating Your Plan

Step One

Life activities have artificially been divided into 6 different categories: purpose in life, play, exercise, social support, nutrition, and creative thinking.

1. Purpose in life: Activities that answer the question, 'Why am I here?' These might include your occupation, your role in the family, your spiritual or civic activities, or anything else that gives you reason or zest for living.

2. Play: Any activity that produces the feeling of joy or that can be considered as 'having fun.'

3. Exercise: Any physical activity or any time spent mentally focusing on physical activities (especially for those temporarily unable to exercise).

4. Social support: The time you spend with family and friends, or times you spend with a psychotherapist, minister, church group or support group.

5. Nutrition: This category includes not just eating, but any efforts you make around food and nutrition -- preparing meals, taking vitamins, going to support groups that focus on diet, and reading or educating yourself about food and nutrition. Your beliefs about food and nutrition are vitally important.

6. Creative thinking: Meditation and imagery are included in this category, as are any specific forms of intentional relaxation. Reading, seminars, or courses related to these areas can also be included.

Step Two

On a sheet of paper, write down each category, then list the activities you do in each category.....Looking ahead 2 years, what would you most like to change?....."

Step Three

Rank the order of the categories as based on your desire to work on them, plus your experience with them. For example, if you spend most of your energy on social support but you would really like to spend more time on diet and nutrition, then [that] might be your first priority.....

Step Four

Now you will begin to set more specific goals. For your first goal, your number one priority, you will create a three month goal. I recommend to our patients that this goal be half of whatever they are currently doing in that category. [If you now 8 healthy meals a week, write 4 per week, because you are setting a lower limit, not upper]
.....After the three month goal, create a six month goal, then a nine month goal.
.....This method of setting goals also confronts fear-producing thoughts like, 'I've got to hurry up and make some changes or I am going to die.' Setting a gentle pace helps you to deal with that kind of desperation and fear in a healthy way.
.....Finally, be aware of a crucial category not listed here: rest. Pay attention to when you need to rest in any area.

Step Five

Now you are ready to write down goals for your second priority. The first goal that you will set is a six month goal. The second is your nine month goal. Stop there and go on to your third priority.

Step Six

The first step you will set for the activity you listed third is a nine month goal. This is the only goal you will write down at this time for this category."

Simonton recommends taking time for the first 3 categories, then taking several weeks to outline the rest of your goals.

Friday, November 28, 2008

The New Advertisements

I have added advertising for revenue. With each click something wonderful happens!

Thursday, November 27, 2008

Exercise for Meditation

Simonton's book offers 5 different scripts for you to record your own self-hypnosis/meditation/visualizations. I won't write them here, but you can get them in The Healing Journey. There are 5: changing beliefs about cancer; developing trust; communicating with your inner wisdom; increasing your trust in yourself through working with pain; using meditation to decrease the fear of death.

This is a link that offers excellent meditation scripts. I have recorded a few on to the computer, which I have really personalized and adapted, as well as the ones from Simonton's book, and use them daily. I'm sticking to Simonton's plan of listening to the first of his series of meditations (about 7-15 minutes, depending on how you record it) for approximately 3-6 weeks. I haven't stuck to his plan of listening to it 3 or 4 times a day yet!

http://www.hypnosense.com/Scripts.htm

Exercise for Working With Imagery

Just so you know, I'm doing these exercises as I go along, too.

(Simonton, p.68)

"A Plan For Changing Beliefs and Developing Greater Emotional Mastery

The most effective time to work on your beliefs is when you are experiencing emotional pain, because then the unhealthy beliefs will be easier to identify. It will be clear that your undesirable emotions are interfering with your life -- for example, if fear is interfering with your sleep. [Atavan is also EXCELLENT when I get out of control]
Here is a process for working on your beliefs.

Step #1 Identify the undesirable emotion you are feeling.

Step #2 Take a piece of paper and draw a line down the middle from top to bottom.

Step #3 In the left-hand column, list 5 or more beliefs producing the emotion.

Step #4 Eveluate each belief with Maultsby's questions. [See previous post]

Step #5 For the unhealthy beliefs, write out healthier, compatible beliefs in the right-hand
column.

Step #6 Keep the paper with you, and when you feel the undesirable emotion, pull out your list
and read it. (You may need to do this 2 to 20 times a day.)

Step #7 In addition, 3 times daily in a calm, relaxed state, using your breathing to help you
relax, imagine the healthier beliefs. Do this for at least 3 weeks, or until the new beliefs
become your new, unconscious attitudes.

Example: Fear

1. I'm going to die within 2 years and leave my daughter, regardless of what I or anyone else does.
/
1. I may or may not be alive in 2 years, and what I do makes a significant difference.
.....
4. I may be able to get well, but I would never be able to maintain my health and keep the cancer away.
/
4. I can get well, and I can maintain my health and keep the cancer away."

Simonton uses the term "healthy thinking" instead of positive thinking because it "has to do with the factual aspects of the belief....

Unhealthy thinking: I will be dead in 2 years regardless of what I do.

Positive thinking: I will be alive and healthy 2 years from now.

Healthy thinking: I may or may not be alive 2 years from now, and what I do makes a
significant difference.

.....The problem is that positive thinking doesn't necessarily align itself with the facts of nature or with real life. We are attempting to develop beliefs based on fact. Healthy thinking is aligned with reality."

(Simonton, p.71)

"Take a few moments to write down what you believe to be true about cancer in general, and about your particular diagnosis and your chosen treatment. Then use the 5 questions to evaluate your beliefs."

Then, Simonton gives 3 central beliefs about cancer that you can begin to work with:

"1. The body has a natural ability to heal itself and overcome cancer. When cancer cells and normal cells are put together in the laboratory, cancer cells have never been demonstrated to attack or destroy normal cells. Never! However, under the sam conditions, white blood cells routinely attack and destroy cancer cells. Cancer itself is composed of weak, confused, deformed cells.

2. Medical treatment can help your body to heal itself, making it your ally in getting well.

3. Cancer is feedback that indicates a need for change -- that you need to do more of the things that being you joy andulfillment, and fewer of the things that result in emotional pain; that you need to learn to thestresses of life in healthy ways. This message is one of love. Acting on it can help you to align yourself with your true nature and significantly influence your body's ability to eliminate the cancer."

Simonton says that changing your beliefs feels like driving you car on the left-hand side of the road, or for you Brits, Thais, East-Indians, perhaps a huge chunk of the world when you think about it, the right-hand side.

Wednesday, November 26, 2008

More from Simonton; Imagery and Inner Wisdom

(p.66) "Your imagination has already played an important role in your illness. Reflect back upon your experience in receiving the diagnosis and the ensuing discussion regarding treatment and prognosis. What were your thoughts? What were your feelings? Were you primarily hopeful, imagining recovery? Or were you more fearful, dreading what was to come? The chances are that you experienced a combination of images, positive and negative, healthy and unhealthy. And all affect your body at the cellular level."

I had taken myself to the emergency department at Guelph General Hospital. Mike was at work and difficult to get hold of. I was admitted, some tests were done, a CT scan was taken on my enlarged abdomen, and then the Dr. returned saying "I'm really sorry but our radiologist feels it's cancer." He left, then the nurse came in and gave me a hug and said she was sorry. I said "You mean this is real?" And she said "This is real."
Then I was alone and tried to get through to Mike on my cell to ask him to come to the hospital after work. I didn't want to call my parents because they're older and I didn't want to worry them, and I didn't want to worry my sisters. We were supposed to pick up Mike's sister from the airport, and after Mike came to the hospital and I told him about our new situation Mike called his mom at her cottage to tell her what was happening and to say that he wouldn't be able to pick up his sister because this had just happened and his mother insisted that he had to pick up his sister. Mike ended up having his sister paged in the airport to take a Red Cab here and he never heard a further word until he went home later.
We met with an angel of a doctor who gave us great hope together, then I remained in the hospital and Mike went home.
Hopeful, fearful, dreading....

"These images are related to your beliefs about the nature of your illness and treatment in general, as well as related to your beliefs about what your personal experience and treatment will be. Remember, the beliefs that trouble us the most are often based on our interpretation of facts, not on the facts themselves. You can learn to change your frightening or unhealthy beliefs and replace them with healthy beliefs. This will help you to get well.
[C. M. Maultsby] developed a simple, 5 question test for evaluating the relative health value of any belief.
Ask yourself:

1. Does this belief help me protect my life and health?
2. Does it help me achieve my short- and long- term goals?
3. Does it help me to resolve or avoid my most undesirable conflicts (whether these conflicts
are within myself or with other people)?
4. Does it help me feel the way I want to feel?

And, when appropriate, also ask:

5. Is the belief based on facts?

If you can answer yes to 3 or more of these quesions, then the belief you hold is considered relatively healthy. If there are fewer or no yes answers, it is important you change your belief to a healthier one."

[beliefs create emotions, emotions are an important driving force in the immune system and other healing systems. Healthy images increase your sense of power, well-being, and peace of mind.

Anyone can comment

I have changed comment access to "Anyone", not realizing before that there was an option. Feel free! You just have to sign up to google.

More From Simonton: Working with Imagery and Inner Wisdom

Summary of Beginning Your Healing Work (p.63)

*Have you created a special time and place for doing your healing work each day?
*Have you involved your primary support person in your work?
*Who makes up your support team? What role would you like each person to play?
*Have you given some consideration to using a therapist to help you?
*If you are using a therapist, what do you think about the work you've done so far?
*If you have joined a support group, how do you feel before and after you attend the sessions?
*Have you identified the stresses/changes that have been a part of your life during the past eighteen months?
*How have you decided to handle questions from friends and family about your health?
*As you get better, how will you handle requests to visit other patients?
*What have you done to reward yourself for the hard work you've been doing to get well?

Monday, November 24, 2008

From O. Simonton and Reid Hensen, "The Healing Journey"

Already I know that this is going to be a heavy book, but Simonton has been referenced in many things that I've read on healing and this is a great book thus far. Some of these exercises have previously been done.

A Forgiveness Exercise (p.51)
"Write down the name of anyone who seems to bring up any feelings of resentment in you. Next to that person's name, write why you resent him or her. Then, going down your list one name at a time, close your eyes and imagine something good happening to each person - something you know he or she would especially like. Do this as often as resentful feelings about each person come up."

Messages and benefits of illness (p.51)
".....Three very important areas for exploration are stress prior to cancer, secondary gain from the illness, and the message of the illness.
.....In our program, we begin by identifying stresses 6 to 18 months before the onset of cancer
.....Sarting with 18 months ago today, list any major changes that have taken place in your life
.....Whatever the change, the onset of the illness may be an indication that you are not able to deal effectively with the stress of that change. Other people may be able to, but you are not "other people". At this time in your life, certain changes may also be more difficult to handle than they have been previously
......Stress is never the only factor in the development of cancer, and it varies in importance from one person to another. But once the cancer is diagnosed, it is the factor that we can do the most about."

"Similarily, I ask patients to take a look at how cancer may be helping them deal with stress. What would you say are some of the secondary gains of your cancer?.....among other things, cancer can allow you to say no to yourself or to others in regard to things that you don't want to do. It can allow you to say yes to important parts of yourself that you have previously denied.
...With cancer, limits and rules become suspended; all of a sudden there may be great freedom to refocus your life in many different ways.
I think of this need to refocus as the great message of cancer. Over and over again I have seen cancer as the body's way of shocking a person into making changes."

1. Decide to get well. Make the decision to do whatever you need to do to get well, knowing that this will take you in the direction of joy and away from pain - both physical and mental pain.

2. Decide to open to who you are, and in doing so allow yourself to be directed by desire and joy and guided by the wisdom that resides within and around you.

3. Develop trust in yourself, trust in others, trust in God, and in all there is. You can nurture your relationship with yourself by acting with integrity; this will also nurture your relationship with others and your relationship with all there is.

4. Ask for help. Open yourself to accepting help. In doing so, watch for preconceptions about where and from whom you can expect help. Don't limit yourself to the information you have right now. Stay open to new sources.

5. Become more aware of your thoughts and feelings of guilt, blame, and failure. Taking responsibility for your health does not mean you are to blame for getting ill. It does not mean you are a failure if you don't improve as much as you think that you should.

6. At the same time, move in the direction of accepting more responsibility for your life, your health, your happiness. You are not the sole creator of your reality, but you are its co-creator. Experience how much you can affect your universe.

7. Feel and acknowledge your emotions, and learn to express them in ways that are appropriate for you and that maintain your personal integrity.

8. Actively participate in the healing process with aliveness, with positive expectancy, and with enthusiasm.

9. Develop the attitude of loving, alive curiosity.

10. Hold high thoughts. Think about things that are mentally, emotionally, and spiritually uplifting or comforting to you.

"These ten actions stimulate the healing process and bring a person closer to physical, mental, and spiritual balance....The exercises in the next chapter will help you get started."

To be continued.....


The author suggests looking for and working with a therapist. This I agree with and I have been connected with an amazing Guide.

The author also suggests suport groups.

An overview of the work ahead (p.57)
"The work we do with the patients at the Simonton Cancer Centre revolves around the basic premise that cancer is a message of love. If a significant part of the cause of cancer is trying to be who we are not, then healing cancer involves opening to who we are....
Here is an outline of the process:" See above 10 suggestions; I can't cut and paste this for some reason.

Saturday, November 22, 2008

Friday, November 21, 2008

My assignment

I have been connected with a wonderful therapist -- she works through music, journals, multimedia and talking, of course; I don't know if I mentioned her before, and she's not my hypnotherapist. I always go there thinking I'll be as together as glue and every time I just open up and a wind blows through my middle, which is like an open sweep.
This week one question I'm exploring is what is the meaning of grace to me. This can be a fantastic and huge question, so if you'ld like you can keep reading this entry, which will talk about religious beliefs moreso than cancer related issues, and which will also help me to answer the question for Monday or whenever I get to it with my new Guide.
From my etymology book -- Grace: favour; prayer of blessing or thanksgiving; pleasing quality; grateful
From my synonyms (and antonyms) book: elegance, poise, gracefulness, poise, beauty, loveliness, charm, refinement, polish, propriety, decorum (CLUMSINESS)
favour, goodwill, kindness, benevolence, goodness, generosity, compassion, clemency, mercy, pardon, forgiveness (UNKINDNESS)
blessing, benediction, thanksgiving, prayer
v. adorn, embellish, decorate, ornament, enhance, honour, favour, distinguish, dignify

I'm going to go with clemency here first because writing that word got to my throat (leniency, tenderness, kindness, humanity, mildness, tolerance, moderation, compassion).

All of those above words encompass the actions of family, nurses, doctors, and friends, extended family friends, adopted "love" family (sisters), and all of those who care about me. All of your expressions have touched me deeply and stay with me throughout this rally.

The next word that got me was mercy (pardon, forbearance, pity, magnamity, benevolence, grace).
I do believe that God hears my prayers, and receives my "words", cries, voice, meditations. I do believe that the beauty that sourrounds us is God's love, and I do believe that the life in everything is God. I believe that Namaste is me greeting the God in you. I believe that Shalom is a wish of peace upon you. I believe that God bless you is a blessing. And I believe that all of these are given to us as ways of regarding others and interacting, and that these are the roots of all yearnings.

Then humanity and mildness: I've experienced, throughout this struggle, that the love is greater than the harm. There are time of deep darkness and sadness, or I have felt sometimes that the medicine was launching a large attack on my whole body, but the love I've experienced and continue to grow in gives my mind something to pin to and I can reach for the height of the fulcrum. Sometimes this is a fight, and one mantra is, of course, "Atavan, Atavan, Atavan" when it seems too difficult. But sometimes it feels, when those moods and emotions overtake me, that I'm throwing a tantrum and need to remember Grace in all of it's above meanderings. So then I do remember and the welling in my throat quells a bit and I can coast more easily until some distraction takes over and I'm on top again.

Shopping and re-decorating/purging is a great distraction!

Also, not mentioned above, but super important to me, is the grace I receive through study and reading. Now also, with my human Guide/therapist/interpreter, I am receiving great wisdom and this grace is wonderous. So helpful. She regards everything in terms of relationship, or so I've come to understand. And when I express any feelings of separation from God she tells me that God for here IS, and her interaction is just as any other relationship. Through her talent and passion for music she interacts with the world, giving strength to some, an outlet to others, praise for her faith, leaving little gifts of kindness resonating behind and with her. Musicians hear and inhabit an entire other world that must be fantastic!

Now for the more religious part. I may have mentioned before that I have decided that the faith of my upbringing is too hard to shake. Though I have dabbled and read, and continue to borrow from other faiths anything that I feel as a practice brings me closer to God, I have decided that Christ lived. Whether Christ was God's only son, I believe that Christ's message was that he was completely resonating or attuned with his highest vibration, and that God's grace could flow through him, in action and wisdom (word). I believe that he resonated through his intuition/immediate insight, and that that is what informed his being, and I now believe that our intuition is the "kingdom of God" within.
So by living through his intuition, Christ naturally felt that the life animating Him is the same life animating you, and that this life is to be revered and loved and tended for. I now believe that we can only do this for eachother, revere and love and tend for eachother. Working with children really helped me to grow in this regard, but it is really with my illness, when I was/am truly on the receiving end of this is so many ways, that I felt it/feel it through and through. I understand it better. Also, I have had so much time to study now, and I feel that there is some sort of integration happening within. NONE OF THIS COULD HAVE HAPPENED WITHOUT OTHERS. Everyone matters so much.

This, I believe, is what God's love is all about (everyone including animals and plants, the elements, etc.). And this is the ultimate Grace: to have been given life and to be responsible for that life, lived according to our highest intuition, and therefore God's guidance (laws), which are there to tend for all. For me, Christ was the word of God because He LIVED the word of God, through complete access and adherence to this intuition. Therefore, he set an example, and the best example, for us to live by, believing (but for him, KNOWING) that we can all do it, too.

So that, so far, is what Grace means to me! Thanks for listening. xoxoxox

Wednesday, November 19, 2008

Yikes!!

Well, today was my last chemo, not the second last as I had thought.
So, I'm feeling very glad that this round is done. And, I am very wary of it returning.
In early December I have a CT scan and a follow-up appointment.
To be honest, I've found it difficult to meditate alone and to keep up motivation. All of that alone is silly. Now I've got to take myself to meditate every day without complaint. I've got to surf that wave of emotional collapse and stay up top. Faith is faith. xox

Wednesday, November 5, 2008

I'm tired of looking like a cleaning lady.

Monday, October 27, 2008

From Viktor Frankl's book, Man's Search for Meaning

Viktor Frankl survived imprisonment in a concentration camp during the holocaust. He established a school of psychological thought termed Logotherapy from his experiences both before and during this time. This really is a stellar book.

"[Everything] can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way." (p.66)

"It is a peculiarity of man that he can only live by looking to the future.....And this is his salvation in the most difficult moments of his existence, although he sometimes has to force his mind to the task." (p.73)

"[Any] attempt to restore a man's inner strength in the camp had first to succeed in showing him some future goal. [Nietzsche's words, 'He who has a why to live for can bear almost any how.']" (p.76)

"What we really needed was a fundamental change in our attitude toward life. We had to learn ourselves and, furthermore, we had to teach despairing men, that it did not really matter what we expected, but rather what life expected from us. We needed to stop asking about the meaning of life, and instead to think of ourselves as those who were being questioned by life -- daily and hourly. Our answer must consist, not in talk and meditation, but in right act and in right conduct. Life ultimately means taking the responsibility to find the right answer to its problems and to fulfill the tasks which it constantly sets for each individual. These tasks, and therefore the meaning of life, differ from man to man, and from moment to moment. Thus it is impossible to define the meaning of life in a general way." (p.76/77)

"When a man finds that it is his destiny to suffer, he will have to accept his suffering as his task; his single and unique task. He will have to acknowledge the fact that even in suffering he is unique and alone in the universe. No one can relieve him of his suffering or suffer in his place. His unique opportunity lies in the way in which he bears his burden." (p.77)

"But there is no need to be ashamed of tears, for tears bear witness that a man had the greatest of courage, the courage to suffer." (p.78)

"A man who becomes conscious of the responsibility he bears toward a human being who affectionately waits for him, or to an unfinished work, will never be able to throw away his life. He knows the 'why' for his existence, and will be able to bear almost any how." (p.80)

"[Mental] health is based on a certain degree of tension, the tension between what one has already achieved and what one still ought to accomplish, or the gap between what one is and what one should become. Such a tension is inherent in the human being and therefore is indispensable to mental well-being." (p.104)

"[Do] not be afraid to create a sound amount of tension through a reorientation toward the meaning of one's life." (p.105)

"In a word, each man is questioned by life, and he can only answer to life by answering for his own life; to life he can only respond by being responsible." (p.109)

"It is...up to the patient to decide whether he should interpret his life task as being responsible to society or to his own conscious." (p.110)

The meaning of suffering:

"When we are no longer able to change a situation -- just think of an incurable disease such as inoperable cancer -- we are challenged to change ourselves." (p.112)

"In some way, suffering ceases to be suffering at the moment it finds a meaning, such as the meaning of sacrifice." (p.113)

"If it were avoidable...the meaningful thing to do would be to remove its cause. To suffer unnecessarily is masochistic rather than heroic." (p.113)

Logotherapy:

"As Logotherapy teaches, there are three main avenues on which one arrives at meaning in life. The first is by creating a work or by doing a deed. The second is by experiencing something or encountering someone; in other words, meaning can be found not only in work but also in love.....Most important, however, is the third avenue to meaning in life: even the helpless victim of a hopeless situation, facing a fate he cannot change, may rise above himself, may grow beyond himself, and by so doing change himself. He may turn a personal tragedy into a triumph." (p.145/146)

"[The] priority stays with creatively changing the situation that causes us to suffer. But the superiority goes to 'know how to suffer' if need be." (p.148)

Frankl:

"I do not forget any good deed done to me, and I do not carry a grudge for a bad one." (p.162)

Transcend anything by making responsible choices.

"His approach to psychotherapy stressed the importance of helping people to reach new heights of personal meaning through self-transcendence: the application of positive effort, technique, acceptance of limitations, and wise decisions. His goal was to provoke people into realizing that they can and should exercise their capacity for choice to achieve their own goals." (p.164)

"The world is in a bad state, but everything will become worse unless each of us does his best." (p.164)

"The meaning of [Frankl's] life was to help others find the meaning of theirs." (p.165)

Am I responsible for creating my illness? A link to one perspective and ACIM referenced.

http://www.circleofa.org/articles/AreWeResponsible.php

Thursday, October 9, 2008

Reflections following some exercises from Kaur's book

This comes from part of the Imagine Your Death exercise. These "Letting go of Anger" exercises are killer. Actually it comes from yesterday, but I want to mention that after working for some abusive employers - abuse of power, obvious mental illness, whatever - we need something like Al Anon for families where it teaches you that it is not your fault your parent was an alcoholic. That's where I'm placing my anger in the 3 instances I'm thinking of - it's not my fault - especially one instance where I was essentially "shunned" by my employer and her assistant, for a good 8 months. Communication through notes, generally making them very ugly in my eyes. Really just the 3 of us in captured in 1's creation. Every day that I drove into work, I prayed for those women's lives to be blessed, and I prayed to be able to forgive them. Luckily, after their hideousnesses, I found myself with the most kind employers you could imagine. Truly a miracle. And even with that, even knowing that the former employer was and is a narcissistic control freak with a real mental illness, I really find it hard to let go of my anger 2 years later. ACIM would say this is my ego feeling elated to be justified in not releasing them to forgiveness. I say that my ego is feeling justified but the rest of me knows I need to forgive and let go. The other 2 instances, I understand that one former employer is just made the way she is, and doesn't care, while the other one made an attempt to patch the damage, real true damage, she had caused me. These last 2 I release. I even have moments where I release the shunner. But then I reel her back in with my thoughts. And I feed her to sharks.

Thursday, October 2, 2008

Just Pictures from Bruce Trail and Tobermory - Lots of Them!!!


Chichimaun a.m. Chichimaum p.m.



Cyprus Lake trail Grotto, Grotto

Georgian Bay, between Grotto and Boulder Beach

Boulder Beach


Grotto, Grotto

Grotto, Grotto
Beautiful and Beautiful


Grotto overpass, Big Tub Harbour Tobermory


CT Scan results



Top: July 30th, 2008; Bottom: Sept.23rd, 2008
This view is taken between my leg bones or top of pelvis, whichever the case may be (most likely pelvis). On the top picture there is a large shadowy mass beginning about 1/2 cm (on screen) above the lighter shadowy mass above the spine (this belongs there), which extends up about 3 cm and across 3 cm between the bones. Above that, there is a mass that is marked at approx. real zise 7 x 5 cm.
On the bottom picture, there is now a wisp where the 7 x 5 mass was, and a very small bit of mass above the spine area.
I really have no words about this at this time, other than all the best words that there are for this and those involved. Just unbelievable. Look at that smooth CT scan.
The glow-in-the-dark cherries are gone from their area (if you click on August postings on the right and find August 1st, you can see the old CT scans); the liver and spleen are almost completely clean; all my levels (blood, etc., are balanced and good/normalized).
I really don't have words, only thanks and thoughts of thanks and tears of thanks caught in my throat and prayers of thanks running through my mind, so I'm posting pictures of our trip, recommended for healing by the way, to Tobermory. Enjoy and love love love!!!!

Monday, September 29, 2008

Finding Joy and Purpose Exercises from "A Call To Women" [and also Men]

Quoted directly from pages 277 and 278 of A Call To Women.

Finding Lasting Joy and Purpose Exercise

1. The first step in finding joy and purpose is to acknowledge that you have a spiritual self. People have called this the soul, inner guide, inner voice, Holy Spirit, higher self, etc......It is the God within linked to the God everywhere.....Even though you may not experience this aspect of yourself often, it is important to acknowledge its presence as a starting point. Close your eyes and take a minute now to link with your spiritual self.

2. The second step is to create a relationship with your spiritual self. [Just as] you create relationships with others through communcation and time spent together, you can create a relationship between the mind and the soul......The mind must relate to the soul, be receptive to it. There are many forms that this can take, but essentially it is a daily spiritual practice. It is a regular setting aside of time to acknowledge and be with your spiritual self, a time of inner listening.....As you acknowledge the soul's presence through a spiritual practice, you more easily recognize its voice and what it (or God) wants from you in the world.

3.The third stepp is to pay attention and actively listen to the soul's calling. This is often synonymous with listening to God's will. It is the voice of intuition that gently urges you to see situations clearly and to act in certain ways. It opens you up to a state of 'being' in the fullness of the moment, experiencing love within the transitory nature of life, and feeling the interconnectedness of everything. It asks you to act in the world, to do what you are most suited for, and to contribute to the improvement of the planet and the human condition......You can answer the soul's calling by asking yourself the following questions:
(All of the questions, and some others, are from the Meaning Mandala exercise, which [for me] is on-going)

Who am I?
What did I come here to do?
What is my passion?
What is the potential in me that yearns for fruition?
What did I come here to learn?
What did I come here to heal?
Who did I come here to love?
What did I come here to express?
What did I come here to teach?
What causes did I come here to serve?
Who did I come here to be?
What brings me the greatest joy?
What can I do that reflects my beliefs and values?

4. The fourth step is to agree to what is being asked of you. This is often painful as the ego allows the soul to be in the driver's seat.....Like a snake shedding its skin, you are asked to release old belief systems that limit your growth and expanding identity.....Faith must also be your companion through this process -- faith in yourself, faith in a higher power or God.

[This one. This one is the one that is the defense against doubt and terror. For me now, faith must be and is a constant and conscious companion. When even a little teeny crack of doubt is opened, the force of emotion and confusion is projective, impairing, tremendous and forlorn. This is like the strain Atlas must feel holding up the Earth.]

5. The fifth step is to obey the guidance given to you from within, to act on the stirrings of the soul moment by moment, leap by leap.....It may be terrifying to obey the inner voice.....You need consistency, commitment, and courage to carry it out.

6. The sixth step is to realize what must die or be transformed in your life for the soul to be affirmed. What do you need to say 'No' to in order to live a purposeful life that is in harmony with who you really are? If you are going to embrace a new way of living, then you must let go of parts of your old life that drain your energy, that reinforce negativity, or that no longer serve you.....You can also change your life through attitudinal shifts. You can say 'no' to that part of you that reacts as a victim or is submissive, overly dependent, or concerned with what others think. You can transform your anger into love and forgiveness.

7. The last step is to be fully present in your activity, acknowledging the unseen hands that help you and the opportunities and soul responsibilities that come your way at appropriate times. You can walk with an attitude of gratitude through life and welcome the joys and hardships of each day. You can actively accept what comes your way and meet it head on. As you are fully present, you become more aware of your relationship and interconnectedness to others.....You can develop the ability to express gratitude for all that has been given to you, no matter how difficult.

[The above is definitely not the full text in the steps.]

There are many exercises that follow these steps, but I'm not there yet. There is a lot to think about for the above 7 steps, and to really do.

Trampoline!!!!

The trampoline is excellent! I returned a folding one to Canadian Tire because I found it to be not so good, and found a great 38 inch surface one at Wal-Mart (on sale now!!!). Tough assembly but when it's done --voila! Doing "moves" on the trampoline is great for the lymph system and the thymus gland which makes all the killer t-cells and other blood cells. I'm calling it Body Drumming because coordinating breathing and arm and leg movements is a bit like trying to get into and keep up a drum beat. If you've ever seen me dance you would know that I have a bit of difficulty in this area. Plus, if you have neuropathy like I have there is less impact on the feet and calves, knees, and anywhere else. You could just flail your arms about or follow the exercises from the book A Call To Women. If you are a crazy jogger you could jog on the trampoline in the winter or when your ankles and knees get ruined from the crazy jogging impact. All for $33.00!!!

Sunday, September 28, 2008

More from A Call To Women by Sat Dharan Kaur, ND

I'm still working on the Mandala exercise (the making of the Mandala), because I've decided to embroider it, which is slow going because it's not really a forte of mine, but it's probably good exercise for my hands. Or else it's crippling them, I do not know.
While flipping through the book mentioned above I back tracked through chapter 10 (p.273-290) and I've started the exercises or am preparing to do them (exercise trampoline - shopping trip).

"Living With Joy and Purpose

You did not cause your disease, nor are you responsible for curing it. If you have breast cancer [or anything else], do not blame yourself. There are many causative factors that place all women [and men] at risk. However, if you orient your living to finding meaning, purpose, and joy, your immune system will respond positively to these cues and will help to protect you from breast cancer [and other illnesses] or to recover from it more quickly.' (p.274-5)

"Your Unique Way of Being in the World

".....When we recover our hope for living a satisfying and meaningful life, we strengthen our defenses against cancer [and illness] as our body and mind respond to our spiritual commitment to live. By finding our own unique and joyous way of being in the world, breast cancer [and other illnesses] will be less likely to find us."(p.275)

"Searching for meaning and purpose

"In his book Man's Search for Meaning, Viktor Frankl writes about the ways in which we we derive meaning from life. For our well-being what we expect from life is not as important as how we respond to life's expectations of us, he suggests.....Frankl called his method of responding to the world 'logotherapy' and wrote that we could all discover the meaning in
life in three different ways."(p.275)

Meaning Through Doing

The first way to find meaning is through creating a work or doing a deed. This includes meaningful work or a career, any artistic expression or something we make with our hands, as well as the day-to day daily actions of our lives...

Meaning Through Experience

The second way to gather meaning from life is from experiencing something or encountering someone. We may experience goodness, truth, beauty, nature, or culture. We can consciously deepen our experience of these by seeking out people or places with deep connections to us, by particiating in events or occasions that are moving for us.

  • Goodness-spend time with good people, retreats, volunteer organizations healing centres, inspirational books (biographies) etc..
  • Truth- studying the works of spiritual giants, meditation, contemplation, emotional honesty in our interactions.
  • Beauty-when we surround ourselves with beauty, we feed ourselves meaning. See beauty where you didn't see it before.
  • Nature-Nature is there for us to experience meaning. Take a trip, walk, plant, go to the beach. How can you bring more of those experiences into your life?
  • Culture-music, art, dance, theatre -- each of these has the potential to deepen our connection to our spirital natures.

Love-Of all interactions, it is loving encounters that bring us the most meaning. When we love another, we help them to actualize their potential, and when we are loved, we more easily realize more of our own potential.

Meaning Through Our Attitude Towards Suffering

The third way we can experience meaning, according to Frankl, is by 'the attitude we take towards unavoidable suffering. When we suffer, we are challenged to change ourselves, and if the suffering is unavoidable, we can triumph in the way we bear it provided that we find meaning in it.' Suffering can be the hero's path, although it challenges us physically, emotionally, and spiritually. If suffering is avoidable, then we should remove its cause, whether it be physical, psychological, or political. If the suffering is unavoidable, then, through our journey into the dark reaches of the soul, we can sometimes pass to the other side having gained in compassion, acceptance, tolerance, and wisdom.....Once we have felt pain, we sense others' pain. We are then more able to extend our hearts and minds in compassionate service."(p.276-7)

Serene has taken my spot on the computer chair, so I will continue this later with the Finding Joy and Purpose Exercise.

Tuesday, September 23, 2008

One year

One year later.... I didn't know if I would be alive. I hadn't realized how much love drives things. There are so many small things to notice: acorn tops, animal calls, etc.. Feeling good is feeling great. Family is wonderful.
CT scan today. Hopefully there is good news -- it feels like it -- and it is one whole year later!!!!!

Wednesday, September 17, 2008

16 pieces


New psychological work








I went to the bookstore looking for something non-cancer related to read, and of course found a cancer related book, My God I Thought You'd Died: One Man's Personal Triumph Over Cancer, by Claude Dosdall and Joanne Broatch.




I started to read that, when I received via mail A Call to Women: The Healthy Breast Program and Workbook, by Sat Dharan Kaur, ND.. While I don't have breast cancer, this was recommended by my hypnotherapist for the excellent info, diet tips, and workbook exercises, not to mention kundalini and other exercises.



So last night I began with one exercise the author calls a Meaning Mandala.:
"It will help you to define where you derive meaning from your life and propel you to manifest that meaning. It will remind you of your soul's purpose here and how to live that purpose. It will help to integrate the divergent directions in your life and bring you stability when you lose your compass or your anchor. As you relate to your meaning mandala, you will mobilize your body's ability to heal."(p.283)

I will try to find and post a picture of a basic mandala...well, one's not so basic, but essentially the format, to be drawn on a nice big big piece of paper, is small circle in the middle, large square framing next large sized circle, all framed by a larger circle. 3 circles, one square
(above line drawing- picture a circle in the middle, a circle just inside the large"ish" square, and lose the giant outer square, but keep the giant framing circle).
(above coloured drawing - blue outer circle, brown square, brown circle, blue innermost circle)
Intersect these with lines like cutting a pie into 16 pieces. Way easier than it sounds. This is a thoroughly enjoyable process to create once you have all the fixin's.
Great verbatim description from annieappleseedproject.org/meaningmandala.html

Meaning Mandala - finding your bliss, path, passion

On a large 24"x36" or bigger poster-sized paper, draw a circle and divide into 16 segments; a square within the circle, points touching the circle; a smaller circle inside the square touching the lines of the square at the central points; and a small circle in the center. This is your basic mandala.

Around the outer circle, write one word for each of the 16 segments: see, hear, feel, passion, forgive, create, do, be, joy, experience, learn, love, heal, express, talents, cause.

Write the 16 questions in a square or circle around that:

What did I come here to heal?

What did I come here to express?

What talents have I come to develop?

What causes have I come to serve?

What did I come here to see?

What did I come here to do?

Who did I come here to be?

What brings me joy?

What did I come here to experience?

What did I come here to learn?

Who did I come here to love?

Who did I come here to forgive?

What did I come here to create?

What did I come here to hear?

What did I come here to feel?

Where is my passion?

In the center of the little circle, write "I am Here".

At the end of the spaces between two radiating lines at the outer edge of the largest circle, write words or phrases that answer the questions around the diagram. [express, cause, see, hear, feel, forgive, create, etc.]

Between the spokes list the progression of actions or experiences that would enhance or develop the meaning at the outer edge of the circle.These might include qualities to develop within yourself, tasks to do, other people to involve, service, devotion, meditation, letting go, bodywork, dancing, growing a garden, goals short and long term etc., or words and phrases that evoke the meaning for you.

Place the mandala where you can focus on it, perhaps during your rebounding exercises. Think about it. Be aware. Don't be afraid to change it as you change.

Gradually fill in the parts, starting from the center, with contrasting colours or collages or whatever you choose, as you begin to actualize the meaning and purpose of your life.For every step you take towards fullfillment of experience, meaning, purpose, joy, forgiveness, healing... Draw or put pictures around the outside that represent those fulfillments for yourself."

Your body needs to know that you are serious about living for it to co-operate whole-heartedly with you in healing."Found in the book, A Call to Women, Sat Dharam Kaur ND, pages 283-5. Thanks to Aliss T.

For someone who is a visual learner this is a great way to look at different psychological aspects of healing. I have taken this slow as there is real thought that goes into filling out each area. I'm using art supplies and the dining room table, a candleabra and incense, background music, etc.. I'm really letting it get into my mind and my way of thinking, sort of like a work of art in progress. I can feel something shifting or moving inside.

Thursday, September 11, 2008

Went to the Dr. and the Dr. said....

"I can barely find this.. I think this tumor had disappeared. I think this is just scar tissue from the operation." YAY! "And this area that was hard to push on has really softened." Breathing out!!!
That was a great Dr.'s appointment. Cat scan on the 23rd, the 3 more rounds of chemo, etc..
(Daily) meditation with hypnotherapist CD, Hospice meditation and Reiki (which I love) and touch therapy. Prayer and Pat's prayer inspirarion, receiced prayers. Practice (at times) of A Course in Miracles and Tolle. This is what I believe has helped.
Many would say it's just the chemo, and this chemo does rock.
In the end though, I agree with me! And my healthier body agrees with all of it.
xoxox

Tuesday, September 9, 2008

Update on Edmund and Serene



Edmund is under a bit of catnip.

From a Sunday outing




















Leopard frog

Baby Heron

Crazy Monarch Caterpillar (?)

Strange sea monster from Marden Pond

Monday, September 1, 2008

Perspective

I have read a book that I borrowed from the hospice: Making Miracles Happen by Gregory White Smith and Steven Naifeh. Gregory Smith has brain cancer and has been fighting it for ten years. But the point I want to make is this: that reading books written by cancer "people" is a far different experience for me than reading ACIM or Eckhart Tolle. They write things that seem like nothing but hit so hard, like being fascinated by babies or putting things in plain perspective.

"'The hardest pill to swallow...is the realization that from the moment of the accident or illness or operation occurs, your life will never be the same. Everybody assumes that they're going back to the way they were. They're going to be in the same job, they're going to have the same physical capabilities. Their work, their spouse, their family, their friends, everything is always going to be the same. When, in fact, it never will be the same after.'"(MMH, p.224)

This weekend I knew was going to be beautiful, and making the decision to stay home rather than going to the cottage caused me much anguish because will I be there next year? Which books should I take the time to read? etc., etc..
Making decisions is becoming difficult for that "reasoning". Not only life situations change, but I can't help but to think in extremes. While remaining positive. And trying to function normally, greet the neighbours, and make a miracle happen.
The hopice is also starting a group in October, where you take a lunch and talk, but I'm undecided if that is for me. I have heard that it is really a good thing to do and will extend your life, and if anyone has attended such a group for illness, please let me know your opinions on it and if you feel it helped you. I suppose I'm committing to the hospice program of a positive meditation/visualization then touch therapy which connects me with others who may have any illness and who want to be well. They all seem very kind and I can almost feel their wings cover me protectively.
Unfortunately I haven't been using the Tibetan bowl very much, but Mike is fascinated by it and loves to make a deep vibration come from the bowl and try it on different surfaces, even though I've told him he holds the pestle wrong and his quests are impossible; he continues and proves me wrong, thank God, places the bowl on my abdomen, and makes it sing a low vibration which I really do feel work its way through me and heal along the way.
I absolutely love the CD that my hypnotherapist made me because it puts me into a deep deep state of "altered" relaxation and it seems to do it to me every time I listen. I would say that this is one of the best therapies I've pursued, with the right therapist, and I absolutely recommend it.
Serene has stepped on some button which has altered the screen completely so I will post this now.

Tuesday, August 26, 2008

Quick Link

This link is from my friend Cindy.
http://www.yourlifestylecenter.com/articles/a_cry/a_cry_for_cooperation.html
It is a good article about managing/coping with the disease, in the author's case: breast cancer.
Just a reminder for everyone out there to get extended health/ sudden illness/ critical illness insurance if you do not have it, and insurance on any loans you may have. May you never need to use it! xox

Friday, August 22, 2008

Amazing

This new hypnotherapist was amazing! I feel very positive and rejeuvinated by our session. For anyone out there in need of positive reinforcement, pumping up or anything, I recommend this therapy, but be sure to find the right therapist. Mine offered a free 1/2 hr. consultation (the dissociation check - luckily she asked no questions about cream) and also a CD of our actual session. Previously I went to a therapist who offered 1 + 1/2 hr. initial session + fee for extra 1/2 hr., no record of session but a CD for meditation made after the session. I guess they do what they have to but my new one ROCKS!!!!! If anyone would like her name -- she's in Guelph -- just let me know in the comments section. Also, I have adjusted to my hair loss better than anticipated. I haven't shaved it down this time so underneath the bandana I look like the giant tweety bird after his jeckyl and hyde meds if you know what I mean.
Something new this week too: I've been going to the beautiful Our Lady of Lourdes or Church of Our Lady to pray and sit quietly. This is calming and really there's such a sense of peace in that church and perspective because it's so huge that it's difficult to feel alone if you're feeling blue like me yesterday, or it's a great place to go if you want to share good energy like I did today.
xox

Thursday, August 21, 2008

Me, me, me.....

Got passport photos 2 days ago, Dr.'s appt. yesterday: no options but chemo now (no operation, stem cell, etc.) Many tumors in abdomen, some the size of oranges. radiation would start below my boobs and down to my pubic bone and would fry my organs and small colon. Told Dr. I didn't want a prognosis and he said that they are always difficult to determine in any case.
Bandana is ON the head, folks, and today I will hide out in the back yard, cut the grass, paint the cold frame, alternately rage and pray and cry like a baby. This chemo has seemed to decrease the size of some tumors. All come from the same Space Cancer cells. We can still plan a week long get away to a tropical paradise instead of Germany, or wherever, for "treatments" now. Thus far. This may change. Getting wills ready, but this has been in the works for a while and my whole family has been getting theirs done since no one had any.
I do need to know from girlfriends, if you're reading this site, if I have any more friends withhout knuckles or who for some crazy reason refuse to wear jewellery; what type you do wear; and you must know you're crazy if you don't. But beautiful.
I am almost done 3 Cups of Tea (so, so, so good), almost done ACIM, and have put Eckhart Tolle down for a bit because I need to concentrate better on his writing when I read. My concentration needs help; I went to nuke my coffee yesterday and found the 10% cream had been in the in the microwave over day/night. I promptly blamed Mike for putting it there, and ultimately had to come to the sad realization that it was me and chemo brain.
Time to wake the neighbours with the lawnmower. Quick Honourable mention for a neighbour around the block: There are BEES coming to our garden, thanks to his innovation at raising bees in his backyard! Also, the NEIGHBOUHOOD GARDEN is beautiful right now, as it has been through all of its stages, but it's particularily tall now.
Also, I have put up a small sign on our boulevard directing people where to step when they park there, so that they don't end up sticking their walker in a 2 foot mound of dirt and plants. So far, and this has been almost a week now, not one person has pulled the car forward enough to let the poor passenger out onto stepping stones far away from the mucky hazard. Maybe they think the sign says don't step here?
Days: 6, Parkers: 0. I will keep an on-going score card. And I'm usually home, checking,

Tuesday, August 19, 2008

Hope this doesn't happen to you...

Here goes my hair again. I was really flipping out about it but Mike calmed me down. I feel I'm forcing the calm a bit but I still have actually quite a bit of hair. It will be when I have to put the bandana on again that I'll be at the breaking point. I'll get a passport photo "just in case" while I still have some hair.
Took a dissociation test for my new hypnotherapist and hypnotherapy sessions. Some of the questions were quite strange:
Have you ever been dressed in the morning and have no recollection of how you got dressed?
Have you ever been driving somewhere and have no recollection of how you got there?
Do you spend time in a place in your imagination?
What percentage of time do you spend in your imagined place?
(I don't know about you, but we have a small Jasmine plant that's blooming right now, and every time I smell the blooms I am taken right back to our apartment/room in Bangkok, and I would gladly spend 60% of my time thinking about that in 10 minutes.)
The joy meter is fighting a real balance to stay active in my perspective i.e. looking at the pretty shed that I've just painted, knowing that the front of the house where I've painted looks just as good, seeing a hummingbird in the back yard and being posed some interesting questions by a "new" person all because I can walk around and drive and communicate and have stamina and think and grow vs. losing my hair again.
Do you hear voices?
What percentage of the time are you suicidal?
Do you ever find something in your house which was a purchase you have no recollection of making?
Do you ever stand beside yourself and look at yourself and not know who you are?
Have you ever looked at yourself in the mirror and not known who you were?
Have you ever been somewhere and not known how you got there?
Do you talk to yourself?
What percentage of the time do you talk to yourself?

Monday, August 18, 2008

Three Cups Of Tea

This book is wonderful, inspirational, and full of things that are meant to be. This provides a great break from worry and intense focus and denial and responsibility and all of those things. xox

Thursday, August 14, 2008

The Hospice

I have been waking up for the last 3 days with my first thought being the lyrics and music of an Under the Pink Tori Amos song "...there's something believing, instead of just leaving..." which has been a great way to wake up and I hope that it continues. I went to the hospice to try their Wednesday relaxation program, and it really was great. I'll continue to go if I can. Unfortunately there were no men there, which would provide a different balance than I've experienced through all of this. Or, maybe for them, it's fortunate! I do not know.
The Tibetan singing bowl meditations have been great, too, and so far they seem to last about 10 minutes. I don't know if they'll get longer but I'll let you know. I lost my ACIM, ordered another one, and found my copy again. I've taken a loooong break from it and I'm almost done. That's new behaviour. I do have a new book, unrelated to healing, but still biographical , called Three Cups of Tea: One Man's Mission to Promote Peace...One School at a Time, by Greg Mortenson and David Oliver Relin. My friend Shawna recommended it to me and it's about a climber (K2 in this book) who doesn't make it to the summit, saves another climber, and then his life just changes course dramatially. I love climbing books, love biographies, and need to hear about someone's simple but extraordinary life right now, so this is what I'm reading. As well I love everyone's comments, which I appreciate so much, and thank you, because like the books or little coincidences like songs or birds, they're always thought provoking or welcomed! I also entered Serene in the Humane Society calendar contest; Mike and I always said she would win a cat show, so at 15 years old, in she goes. Miss July!

Monday, August 11, 2008

wills, battles of, need for, etc., death

Now that I'm thinking again of death, because of the nature of this collection of tumors, as well as their location, I'm going to write about what's hurting. I'm not ready to go. I have so many that I love here. The last time I was really thinking of Death was before Christmas, when everything was really close to it, it seemed. So many hospital stays and such rapid weakness.
Again, I find myself at the same place, thinking that I really truly finally decided that I had it together, at least on the outside, at least some security - job, finances, house, control. Then swish goes the carpet. Then swish again. I just do not want to die now. I do not. I love those I love so deeply now. Really most things do not bother me. I'm trying to forgive as I go along, and I'm really only stuck on one or two people.
I do realize that the physical pain is different this time. The deep tumors (3) I'm not aware of; the smaller ones are obvious. I don't want to die this year. I want to die when I'm 80 or older, not now. I think that I'm working so hard on creating a miracle then I forget to pray for a few days.
I don't feel smart enough for this.
All the beauty there is.
So much to learn and appreciate and see.
All the kindness.
I like what Mike and I have created together.
I really like who Mike is.
I really love Mike.
I really love our cats.
I love our families.
I love my friends.
I like my neighbours.
I love my town.
I love my little wrinkled face and my fluffy hair
and the way that I love God.
I really like giving gifts, now
and watching the things that I say.
I pay greater attention to detail for 5 seconds
then I forget.
I need waaaaaaay more time.
I remember Pat's wisdom and fashion my healing meditations/visualizations after hers, forgetting some parts sometimes.
Death to me is just a great big no-go.
These are the things that hurt. There are others I know who are hurting and my thoughts and prayers are with you. But truly a lot of my thoughts and prayers are with me, and thanking those who have prayed for me or thought of me.
My Dr. hasn't really discussed my tumors with me, because I think the situation is pretty bad.
It doesn't feel like it's lookin' good. Kind of like having a fabulous tan, looking great, eating well, and sinking in quick sand.
Love really is the thing, you know. It has been, all along. It's awful how we misplace it or ignore it or mistreat it or hoard it. Hide from it.
So with sheer determination and will power, I plan to live this year, and next year, take whatever chemo they give me, tests, etc., etc..
I hopefully will not fall into the shadow of depression and sorrow, but will trust to my developing religious leanings.
With imagined centrifugal force, I will not listen to my ego but rather the I behind the I. Instead of being blue I will stick like glue to life.
I will practice ACIM.
My Tibetan singing bowl and meditation I will do every day.
I will not do sit ups. yick.
With sheer determination and will power and God's love, my goal is to live. My faith must grow to meet the goal.

Sunday, August 10, 2008

Done and done

Well, my kick-ass urologist Dr. internalized 2 stents, no problems, thus fixing part of me and increasing my quality of life. Everyone there was great, and I was out the whole time. Supurb!

Thursday, August 7, 2008

Pre-op

Today I head to Hamilton Hospital for pre-op tests, such as x-ray and ultrasound, to see if the nephrostomy tube has slipped, and I suppose to deal with fluid build up. I'm trying to attune my abdomen to my healing mind which is a relaxing pursuit, and I'm trying to keep fear at bay which feels like practicing denial more than anything else. My feet this past weekend were blown up like beaver tails, but they've shrunk now, and they're tingly. I still have about 2 inches of hair, which I adore, but soon it's back to the bandanas and my pirate ways. I went under the water at the cottage in homage to the Dr.s who internalized the nephrostomy tube so that I could do just that.

Saturday, August 2, 2008

For Friends

For my friends who are upset and are afraid that I don't want to talk about these new developments, fear not, I will talk to you about these new developments if you want to.
Love straight to You from Me xoxoxox

Cold Frame and Wildlife


Friday, August 1, 2008

I feel, today, this is worse than I thought.
Most people try to do their best.
Things are probably better than I think because of who my Dr.s are.
I have no deep and telling thoughts at this time.
And, of course, what the fuck is this?

Cold Frame-harder to build this way !!!


Today - Abdomen shots - Ascites (fluid) gathered at top/side in grey and 1.5 litres drained. Shiny whitespots are cancerous shiny white spots


Same tumor gone, small ones on liver and spleen growing bigger


First tumors leaving - see shadow on spinal column


Not too many words at this point







First, here's our tattoos.






Me: Oops, wrong pix


I'll try again. But here's some hair that the new meds will be clearing away in the next 3 weeks so I will be bald again. My Dr. is doing his best to fight what I have, and you will see that shortly.
























Thursday, July 31, 2008

Be your own advocate

I had a few glitches happen yesterday after (actually before) the CT scan, whch took until 8:00 to clear up, thanks to my excellent Dr. who called me personally. In any case, the tumors have grown and there's some other stuff going on related to the nephrostomy tube and urine being retained as well as possile ascites on my upper abdomen. I seem to have a calcified node below my navel that Mike and I found. The appointment has been moved from next Wednesday to this Friday, and we'll talk abut new chemo options. It could be bye bye hair again so I'll take some pictures of what I've got.
All of which amounts to: major emotional break down. At least I had a few nights to cuddle up against my mom. Mike's good too. Today I am much more calm beause I woke up well and I have my tatoo appointment at 4:00 and I can't wait.

Tuesday, July 29, 2008

A Change is as Good as a Rest

Just came back from the most beautiful place on Earth - my cottage - feeling, like with a sunrise, I "stole a moment of paradise" as some wise Sikh (I don't remember who) said.
Anyway, my abdomen is still quite distended, although tender, not fluidy (I hope). CT scan tomorrow, tattoo Thursday, maybe more cottage Thursday night for a few days. I'm so scared these days, but thank God for Atavan!

Saturday, July 26, 2008

ACIM - Illustrated theory. Pictures!!!

http://www.acimfind.info/acim_notes/archives/category/acim-teaching/

Excerpts from an Ekhart Tolle interview

Interview at Omega Institute / Fall 2003
Interview By: Josh Max

JM: I was also struck by your interpretation of the cross as a symbol of "thy will be done".
ET: It's a strange dualistic symbol. Basically, it's a torture instrument. To me, Jesus stands for humanity. So this man is nailed to the torture instrument, totally helpless, in deep suffering. At that point comes total surrender to what is. "Not my will, but thy will be done." At that point, the symbolic significance of the cross is changed from being a torture instrument to a symbol of the divine.
So what it points to is that the very thing that seems to stand in the way of realizing who you are. The very suffering that comes with being here in this physical realm---because eventually some form of suffering comes to everybody---can become an opening into that which we call the divine.
If you're lucky, disaster comes before the physical form is lost and the psychological form dissolves. This sometimes happens through extreme suffering, when people lose everything, or they find out they don't have much more time to live. So they are faced with extreme disaster which cannot be explained away.

[Quick aside here: This is where I find myself]

Philosophies collapse in the face of extreme disaster. Before, they might have had philosophy or religious beliefs, but when quite a few people face death of a loved one or their child or spouse, suddenly they question their beliefs. "This wasn't supposed to happen to me, I had a business arrangement with God. I wasn't supposed to suffer."
The mind, the "me", collapses. Explanations fade. So you're faced with disaster you cannot explain that seems to deny the existence of something deeper. The cross seems to stand between you and the transcendental dimension to love. But, strangely, that very cross is the opening also.
Somebody once put it this way: "What stands in the way is the way." And you realize that when you no longer internally resist the form that this moment takes. I call it the "is-ness" of this moment.
....

JM: I was also struck by your interpretation of the cross as a symbol of "thy will be done".
ET: It's a strange dualistic symbol. Basically, it's a torture instrument. To me, Jesus stands for humanity. So this man is nailed to the torture instrument, totally helpless, in deep suffering. At that point comes total surrender to what is. "Not my will, but thy will be done." At that point, the symbolic significance of the cross is changed from being a torture instrument to a symbol of the divine. So what it points to is that the very thing that seems to stand in the way of realizing who you are.
The very suffering that comes with being here in this physical realm---because eventually some form of suffering comes to everybody---can become an opening into that which we call the divine. If you're lucky, disaster comes before the physical form is lost and the psychological form dissolves. This sometimes happens through extreme suffering, when people lose everything, or they find out they don't have much more time to live. So they are faced with extreme disaster which cannot be explained away.
Philosophies collapse in the face of extreme disaster. Before, they might have had philosophy or religious beliefs, but when quite a few people face death of a loved one or their child or spouse, suddenly they question their beliefs. "This wasn't supposed to happen to me, I had a business arrangement with God. I wasn't supposed to suffer." The mind, the "me", collapses. Explanations fade. So you're faced with disaster you cannot explain that seems to deny the existence of something deeper. The cross seems to stand between you and the transcendental dimension to love. But, strangely, that very cross is the opening also.
Somebody once put it this way: "What stands in the way is the way." And you realize that when you no longer internally resist the form that this moment takes. I call it the "is-ness" of this moment.
JM: Would that be disaster or the honk of a horn while I'm trying to work?
ET: Yes. A little thing or a big thing, resistance is basically the same kind of mechanism. An internal "no" to what is. And since the now is all there ever is in your life, your entire life unfolds as the present moment. People don't realize it, but all they ever have is "this". This moment. Always.
It seems so strange to put it into words. Your life is always this moment. No more, no less. But just "this" is what most people unconsciously trying to run away from. They're always in some future moment where things are hopefully better, or more fulfilling. Or mentally they project a future moment they see as fearful, that they have to tackle this possible thing that might go wrong in the future and they try to deal with now.
Ignoring the aliveness that is actually there concealed in now. It is a collective mental habit to run away, to deny and to resist the is-ness of this moment. Not to aligned with now. And everybody inherits that as a part of their collective mental conditioning. They're taught to live like that from their parents, from their schools. They probably inherit even the very minds structures that create that kind of consciousness.
But there's a shift happening in humanity, a shift in consciousness, happening now because it has to happen now. Because if it doesn't happen now, mankind probably won't survive. The dysfunction of the human mind and its condition is becoming more and more intolerable to the planet, and to humanity. People can't live with themselves much longer. The planet cannot live with humans much longer! The dysfunction has become so magnified through technology.

Wednesday, July 23, 2008

The Dr. didn't think that there's fluid in my abdomen (ascites - carries shedding tumor pieces around the abdominal cavity), but rather an infection, so we're treating it with antibiotics and have a ct scan scheduled for next Wednesday. Thank God! Also I have new meds for the neuropathy, and no constipation as a side effect. This was all so eerily familiar but instead yay it's possibly an infection!
Off this morning for Dr.s appointment. Little sleep, in and out of worry. My friend Julie is driving me which is a blessing, also I'm about to take an Atavan which should help the mood this morning. Keeping all advice and words of support in mind. xox

Sunday, July 20, 2008

Parallels ACIM and Eckhart Tolle's A New Earth


Here is a rather long excerpt from A New Earth, which is essentially exactly what A Course in Miracles says is the way to heal; by healing others, we heal ourselves. By overlooking others' confused behaviour and recognizing it as their illusion, we help them to heal.

(Chapter: The Core of Ego)
"Resentment is the emotion that goes with complaining and the mental labeling of people and adds even more energy to the ego. Resentment means to feel bitter, indignant, aggrieved, or offended. You resent other people's greed, their dishonesty, their lack of integrity, what they are doing, what they did in the past, what they said, what they failed to do, what they should or shouldn't have done. The ego loves it. Instead of overlooking unconsciousness in others, you make it into their identity. Who is doing that? The unconsciousness in you, the ego. Sometimes the "fault" that you perceive in another isn't even there. It is a total misinterpretation, a projection by a mind conditioned to see enemies and to make itself right or superior. At other times, the fault may be there, but by focusing on it, sometimes to the exclusion of everything else, you amplify it. And what you react to in another, you strengthen in yourself.
Nonreaction to the ego in others is one of the most effective ways not only of going beyond the ego in yourself but also of dissolving the collective human ego. But you can only be in a state of nonreaction if you can recognize someone's behaviour as coming from the ego, as being an expression of the collective human dysfunction. When you realize it's not personal, there is no longer a compulsion to react as if it were. By not reacting to the ego, you will often be able to bring out the sanity in others, which is the unconditioned consciousness as opposed to the conditioned. At times you may have to take practical steps to protect yourself from deeply unconscious people. This you can do without making them enemies. Your greatest protection, however, is being conscious. Somebody becomes an enemy if you personalize the unconsciousness that is the ego. Nonreaction is not weakness but strength. Another word for nonreaction is forgiveness. To forgive is to overlook, or rather to look through. You look through the ego to the sanity that is in every human being as his or her essence."

Exactly what ACIM says: to forgive is to overlook, to overlook is to heal another, to heal another is to heal yourself.

The one thing that I struggle with in all of the reading that I do is the suggestion that we cause our own illnesses. This is explained to me through ACIM that the body is a learning tool. It cannot of itself make decisions, or feel emotions. The ego uses the body for pleasure, pride, and (I think) punishment. The mind is what directs the body, and a sick mind, a mind divided against itself, is under the illusion that the ego is the "I am" and not the mind itself. When you heal your mind, through forgiveness (extension) and correction of errors in perception, and are no longer subject to your ego, your body is healed also. This I can accept, but I wish I was one of those people immediately enlightened and healed in times of great strife.
Also, I have struggles with fear, fearing not, working through fear, accepting fear, and all of that. Healing can't happen when fear is present, so things are a bit difficult here.
If anyone can help me here, please let me know. Use the comments spot to talk.

Friday, July 18, 2008

The latest development is now a swelling of my belly, thinking that maybe it's digestive issues, but this is how it all began. I'm praying that it's nothing, as it gets bigger, and I'm hoping that it's caused by gas. When I lie down it expands or weighs down my middle and when I sit up, it feels solid. I really can't sleep.

Monday, July 14, 2008

wall

I seem to have hit this point where nothing is right and there's nothing that can be done or that I can do to change how I feel. I've gone off the "serious" reading for too long, maybe. I think that the disappointment of not going or knowing about my old job is quite painful. I think that this has been going on for a long time now and keeping hopeful is becoming an art form in and of itself. If I visit with people I don't feel like talking about the cancer and I don't feel that visiting is the same anymore, because I am always too aware that I have cancer. Part of me is so happy to have hair and eyelashes again so that I can pass as "normal" and I look healthy from the outside, and another part of me is sick of the neuropathy, the digestion issues, the lack of sleep, etc., etc.,. Keeping it together has been hard these past 2 weeks for some reason. I'm going to take a hint from Edmund and sit with my face toward the sun, listening to the birds.